NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 300 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

GARD is a program of the National Center for Advancing Translational Sciences (NCATS) to provide access to current, reliable, and easy to understand information about rare or genetic diseases.

LAL-D Source is an Alexion Inc. sponsored website aimed at providing disease education information for those living with LAL-D and those seeking diagnosis.

LAL-D Aware was created to bring patients and families together to share experiences and knowledge of LAL-D. It’s mission is to provide support for patients and families who have been affected by LAL-D and to educate and raise awareness to the medical community.