COMMUNITY

European Resources

The following websites have been provided as a source of information, directing you to other resources and services specific to LAL-D.

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Hosted by trusted patient advocates, RareConnect is a place where rare disease patients can connect with others globally. Patient organisations partner with RareConnect, itself an international patient organisation, to create communities and provide moderators from within their network.

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EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 962 rare disease patient organisations in 73 countries.

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Metabolic Support UK is a leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide that have no other support.

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Orphanet is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases.